Categotry Archives: health
I had a sofa day. Not the entire day, because I did do some drawings, just most of the day. Nano and I went for a firm walk in the afternoon, and then crawled back on our spots on the sofa to watch MacGyver. I also made a drawing about a recent event in the [...]
I spent the morning in the hospital, getting my iron-IV. My heamoglobin levels have dropped slowly since surgery and my iron supply has fallen well below normal levels. This probably plays some part in my ongoing fatigue and my doctor decided that instead of pills, I’d get two iron IVs. Today I had my first, [...]
My new rheumy — so far, very pleased — agreed that nausea caused by Plaquenil doesn’t help me. I didn’t even have to explain it, he told me to stop taking them right away and to increase my MTX. This means I need to get new pre-pared syringes.
This makes the MTX basically the only ‘real’ medication I still take, apart from the occasional naproxen or paracetamol (Tylenol).
I do take a decent load of vitamins in a medicinal way, not taking them causes plenty of issues, and they may interact with each-other / other meds so I always count them as medication.
My last blood-test showed a deficiency of vitamin D, ferritine, low B12. Still waiting for the vitamin B1.
Currently I take:
- once per week, as injection, for the RA
- folic acid
- once per week, to counteract the side-effects of MTX
- vitamin B12
- once per month injection due to inability to absorb
- vitamin D
- as cod liver oil, twice per day, also comes with vitamin A, and as tiny tablets, four per day, for ‘senior citizens’ which just have D in them
- also for ‘senior citizens’ which has extra vitamin B1, iron and zinc, twice per day
- twice per day, with extra vitamin K and D
Mixing and matching turns into another juggling game because too many of certain vitamins (A) and minerals (iron and zinc) poison my liver, and my liver has a hard time dealing with all the other poison already, so I don’t want to push that ;)
My body needs lots of fine-tuning.
I went to visit my podiatrist for the first time, after my rheumatologist referred me, due to ongoing pains in my toes despite lack of arthritis (actual inflammations). I had to take of my shoes and walk around a bit, and she did some pushing and pulling and feeling in general. At one point I [...]
Yesterdday I got the all clear for ‘clear liquids’, today I go the all clear for ‘everything’.
If all goes well I get to go home tomorrow.
- water went fine
- lemonade went fine
- apple juice went fine
- veggie stock went fine
Ofcourse, I don’t know for sure until a couple of hours from now. But it sure tasted good :)
I had no further photos and tests today, the pain had subsided enough for the doctors to conclude that their biggest worry (I had sprung a leak) did in fact, not happen. We don’t know the exact source of the pain, but suspect it just got caused by the whole surgery thing. They pulled out my intestines completely and then stuffed them back, this will hurt in multiple places eventually. The epi apparently hid it very well.
To make sure I’ve healed well, they’ll have a contrast-photo taken this friday after which I can start eating again (provided it did indeed heal). My sister, who had her chats in her hospital today, told me they don’t do the photo in the other hospital. Not all leaks show up on the photo and they want to prevent wrong-diagnosis. Personally I think you can just keep the info of ‘it doesn’t always show’ in the back of your mind, but maybe they lost the key to the backdoor, you never know.
This morning the catheter finally got removed (piece of cake) and due to my IV breaking again (clogging up) they removed that temporarily and unhooked me from the feeding-tube. And then… I could shower! I washed my hair and cleaning the wound with water. I have ripped a little skin at the bottom, probably due to the vomiting due to the nose-tube and such. I noticed the area burning a bit the days before. It looks all good now, still swollen. My whole abdomen seems very swollen in general, but this will go away in while.
Apart from the recurring nausea, I feel pretty good. The painmeds work and last night I got a sleeping pill, slept a few hours in a row. Today I walked around the ‘block’ (the floor) a bit, and it went fine. Very tired afterwards though.
I’ll try to post an update tomorrow or friday again, in general, in all looks really good.
Hey there; Grimm again for today. Sorry about not leaving an update again yesterday evening but after a visit at the hospital, the shopping, the dog-walking (dog-jogging, 9km’s of it, really) and then watering the plants in between stuffing a pizza down my throat; things got a bit late and hectic. Then, when I meant to catch up this morning, it turns out that Tanja’d already gotten her EeePC out into the open and taken matters into her own hands.
However, as the title suggests, yes, she’s offline a bit again; and voluntarily (gasp!) aswell. The truth of it is that it’s more of a practical nature than anything else: tomorrow she’ll be having a few exams and photographs taken to determine the function of her digestive tracts and such which will leave her belongings un-attended for at least a large part of the day. Now, apparently, of all the stuff in her bedside drawers so far, her EeePC getting stolen by hospital goblins is her most acute concern. It’s so pretty and shiny and … … my precioussssss…
cough erm; well, in any case; I’ll be keeping it safely here at home for the moment until returning it to her tomorrow , safe and sound (I promise!… No, really !).
So far on the hi-tech side of things; the bio-tech side of things seems to be progessing aswel, though not without a few side-effects. The epidural had been turned off and with an NaCL flushing of the system , things seemed to be safe enough to remove it entirely. Things were allright up to a few hours later when she started having side-pains that she can’t really identify with anything in particular (yet). On another note; she’s identified which of the many different anti-nauseousness medications seems to actually work and has gotten the resident nurse to supply that kind again (though not without difficulty – it really feels at times that without doctor-prescriptions and regular fresh batteries stuck inside them they have no autonomous functions in them whatsoever.. though , to be fair, there’s a number of ‘cluefull’ exceptions, I’m sure. Darn, I didnt mean to have a period right in the middle of a parenthesized comment which is now becoming so long that it really warrants having been made into it’s own sentence in the first place.. Just by continuing to type I of course am just making the problem worse so here it is.. ).
There, made it into the next paragraph. So, to continue the story: she hopes to be finding out what might be giving her those side-pains sooner, rather than later. They might be connected with the light pneumonia that she’s been diagnosed with earlier and from what she told me her mother told her (still with me?), a side-pain that high up seems to correspond with pains that a pneumonia can be the cause of. It seems (though i forgot to actually ask) that her fever hasnt been bothering her as much as it did earlier or might even have subsided; as she didnt look as tired as before even tough she said she hadn’t slept much over the last two days. And then there’s the fact that at least one rather unhandy piece of tubing will be removed somewhere tomorrow aswel which should improve both her comfort and her mobility quite a bit.
Well, that’s it for now. Expect some more tomorrow; perhaps even by the lady herself! Till then; keep commenting!
Hi all, thanks for the kind comments!
Saturday I started having pretty bad pains in my stomach and after I started to cry, the male nurse gave me a shot of morphine (see, crying works!). It improved a lot after that. Sunday I felt mostly nauseas from the tube in my nose. It caused all kinds of problems with coughing and such. I did not sleep much that night, mostly lay on my side, trying to puke (which did not work, and that hurts even not right after surgery) They removed the tube monday-morning, and my nausea has improved significantly since then. I still have some, but blame that on the actual cutting up part of the surgery. I’ve got a tube in my stomach to feed me and I don’t feel hungry at all. This friday (they said thursday at first, but no room for me :( ) they will do a contrast photo of my insides to make sure everything healed properly. After that, I can start eating and drinking again. I get fluids through the IV as well as antibiotics, due to a mild pneumonia I seem to have gotten. The antibiotics will serve a dual purpose! Today the epidural will come out, and maybe today but more likely tomorrow, the catheter will follow. As we can’t really prevent a UTI due to catheter, I like that I already get antibiotics :)
Right now I can have little bits of ice-cubes to wet my mouth and have little candies to suck on so my throat keeps working well.
I already feel much better than this weekend (I can get in and out of bed on my own, I can walk around a bit), and hopefully, removing the epi will not make me worse again :)
Anyway, time to clean up. See you later!
Righto; first of all, apologies to the people who actually DID leave comments here but didnt have them appear on the blog. Me with my less-than-useful knowledge of WordPress and other things involving the ‘blogosphere’ didnt notice that I (the/an admin) need to approve comments before they’ll appear here.
As such, I’ll transfer the greetings and such that have been left there and, yes, this is Grimm behind the keyboard.
Having cleared that up emberassed cough, let me fill in the situation on sunday. She appears a bit more awake and a tad less tired than on saturday. Still a little bit of fever but she was at least ready for the idea of being able to watch television from her bed. She’s been helped out of the bed to sit on a bedside chair for a bit and she now has her NaCl, Glucose, epidural and liquid food now on one of those snazzy mobile rolling posts to get herself around the place. I expect she’ll be helped out of bed again today; more about that later today.
She’ll be happy to get some info from the london.pm crowd, I’m sure ! Again my apologies for my weak blog-fu.